New User - hello!
Hi, I'm Nick and have SPMS, and am now wheelchair bound, having been diagnosed 16 years ago at the age of 42. I am married with three children, the youngest of whom is now 21. So the disease struck in the middle of their childhoods, which was the toughest part of it for me and my wife. We have been married for nearly 30 years, and I feel desperately sad about what this affliction has heaped on my family. I know it's not my fault, but it's them I feel for. I have been looking around this site and find it truly refreshing, even where there is uncertainty and anxiety. I love the honesty people share, the willingness to be candid, and the receptive encouragement from fellow MSers. I now work from home in Kent. I used to drive up to London every day - whilst the upside of not doing that anymore is obvious, the downside part was worse than I anticipated. I miss the camaraderie of an office and the day-to-day banter, adult conversation and the exercise of the little grey matter! And so I have started a blog, where I share my passion for classical music. I would not be so presumptuous as to include it here, but I am only too happy to give its address if encouraged to do so - it's very light-hearted.
I would like to read it if you wouldn't mind being homebound myself I find myself searching for things to do. You sound like a strong hearted guy. I am sorry that you have so many disability's but like you I try to keep my chin up. Thank you Ryan
Thank you for these warm responses already. Ok, with trepidation...manuscript2016.wordpress.com Hope some may enjoy it. Nick