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Newbie 👋🏻

Hi everyone. I’m newly diagnosed (August 22) with relapsing/remitting MS. I’ve just started on Tecfidera and I’m feeling a little overwhelmed with it all. My journey to be diagnosed has been rather quick. I had optic neuritis in 1 eye in March and was fed up of being fobbed off so literally demanded an MRI. It showed brain lesions and then a lumbar puncture confirmed MS. My sight is fine again and I’d say I’m asymptomatic but being put on this medication and waiting for another relapse is so scary. Any advice would be greatly appreciated!x

No advice but just wanted to say hi …. In a very similar boat, fairly swift diagnosis and just about to start on tecfidera (due to be delivered on Friday after weeks of waiting)! I thought I was taking it all in my stride, but really taken any time off work or changed my routines at all since diagnosis but for some reason I’ve begun to feel completely overwhelmed- like I just want to close the door for a while! I wonder if starting the treatment and the enormity has just hit me 🤷🏼‍♀️ Anyways good luck 😊


I was diagnosed June 2021, my sheer luck. I attended a doctors appointment and it was a locum. I told him about individual problems I had such as numbness in my left hand, having to go to the loo often let's say. I had noticed my eyes weren't focusing on distance. Went for the mri and then diagnosed. My attitude is it is what it is. I can't change it, just got to learn to deal with it. I chose tecfidera because it was less intrusive, easier to administer. The only side effects I get is my face and sometimes the rest of my body goes bright red. It lasts for 10 minutes or so. I believe because I try and eat healthy and exercise my ms may be more severe. I work full time and I do get fatigued, my memory can be challenging such as forgetfulness or can't remember words etc. It is frustrating but my colleagues will come up with the word I was looking for, team work!! They know I have ms, im not ashamed to tell anyone, some understand what it is some have no idea. Another person I work with, has ms and it is great to speak about it, because they get it. Which I believe this group will be helpful with and supportive.