@21112009 

Last reply

21112009

No treatment

Please, if you've chosen not to follow any long term treatment ever since you've been diagnosed, tell me how your symptoms have developed? And please, share your motivation for not subscribing to it. Do you regret it? Have you taken this decision with your neurologist or by yourself? I have been diagnosed in 2009 ans I haven't suffered major replapsing episodes, so I've decided (on my own, the doctors didn't know what to advise me, given my rare symptoms) not to go with treatment. But this year has proved to be a more difficult one for me and I am wondering what if I should start one.. What scares me are the side effects. Also, if you take a look at some studies, treatment vs no treatment, it's not so much difference between the frequency of accute episodes...
@potter

I started a DMD when I was first diagnosed, I had two aunts who had MS before they had any DMD's. I had first hand knowledge of what they went through with their progression of MS. I decided I would do or try anything to slow this disease down. I have been on two different DMD's and have had side effects but my body also got use to the medicine eventually. I had Rebif shots for five years until I had problems with my skin, I am going on my third year taking Tecfidera. I had problems with it at first but my system got use to it, I haven't had any relapses since I have been on DMD's. If you decide to start a DMD we can help you deal with the side effects. The progression of MS is scarier to me than any drug. Potter

@Monica2015

21-11.2009, take a glance at my profile when you have free moment. I largely refrained from the drug route until October last year, having been dx 11.5 years ago. The synopsis therein will hopefully fully illustrate my beliefs then, and the subsequent drastic and contrasting change of thinking thereafter. Feel free to contact me if further questions.