Ok, now for the serious stuff. I was diagnosed with MS in 2013. “Demyelinizing (I made up that word, but I think you know what I mean) Illness” they called it for the first few years. From the very beginning I took it as MS. They used to say it’s not hereditary, but certainly, in my family, i…

Do you suffer from light sensitivity?? I always have to pull my curtain when im in my room and I feel like a vampire, I don’t drink blood but having to sit in the darkness is a bit :-(…lol saying that tho when it has been warm Ive sat in the garden with my shades and enjoyed it… …

Hi there, is anyone in the situation of being on either Gilenya or other Imunosupresive drug and having skin problems like Rosaceea? My face is terribly red and I was diagnosed by the dermatologist with this condition but seems like prescribed medication did’t do much. Answers related to this…

Does having ms mean that I will inevitably end up in a wheelchair? I know it’s different for everyone and there is no definite answer but In general does it mean that eventually I will? I’m 21 and currently have no symptoms Other than some tingling if I excercise and I find it hard to accept Th…

Hello I’ve just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I’d share on here anyway. Ms patients in the vulnerable category that requ…

Hi everyone. Hope everyone is well?? Been off Teffidera for 1 month now. 1 more to go before starting Tysabri. My neurologist thinks this will still go ahead despite covid 19 and for some reason I am SHITTING myself ha! Guess it’s normal to be nervous about a new drug!! How is everyone copin…

Hi guys hope you and you’re family’s are all doing well! I posted a while back on this about being diagnosed last year at the age of 16… I’m now 17 and just wondering is there anyone my age or maybe a bit older up for a chat? I haven’t seen an awful lot.

Has anyone actually been given anything that’s stops the itching. Please help Thanks in advance Jo

Hi, I was diagnosed January this year with RRMS so I’m very new to all of this. I was having symptoms for 2 years before I finally got diagnosed and I’ve been able to just learn to live with these symptoms and get on with it. However, my fatigue is horrendous! I am tired most days which is real…

Hello, I discovered this website a couple of days ago and I thought I could use it as group therapy (for the situation nowadays and because I’ve never had access to group therapy). First I’m going to introduce myself and in another post I’ll go with the heavy stuff. My name is Eloy, a 43-year…