Tysabri 1st treatment on Wednesday
Today I started taking Oxybutynin (ditropan) fingers crossed it stops my bladder urgency.
On Wednesday I will have my 1st Tysabri treatment.
Yes my JC blood test came back positive but after lots of research and deep thinking, I still believe it's going to be worth the risks.
I totally trust that my fantastic MS specialist nurse and MS specialist neuro doc will monitor me closely and stop my treatment prior the max 2 years I'm allowed if they're concerned with any test results.
It stopped mine. It's still on my repeat prescription but I haven't ordered any for a couple of years. Gives you a very odd taste in the mouth, though.
Hey Lucinda! How is the Oxybutynin going? I started it in December 2012, and it really helped my bladder issues at the time (urgency and incontinence). I would have stayed on it except I had a couple more relapses and my bladder (got worse) has just been treated with botox (the oxybutynin just wasn't doing it any more). But it definitely helped! I did Tysabri for a year. I was JCV+ from the start, but like you, I weighed up the risks and went on it. It really did help with my relapses (both less often and not so bad). They monitor your JCV level when you are on it, and because mine went up I had to come off after 12 months. Bit of a poo, and hopefully this is not something which happens to you xx Hope it is going well for you :-) Jas