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@lilbird 

Last reply

lilbird

so... why not choose Lemtrada?

I'm really just curious to know why those of you who have opted for other treatments passed on Lemtrada? It's starting to look to me like the most logical option & there are certainly many people on this site who strongly advocate it. I guess what I'm asking is, is there something I'm missing at the moment? Does it just come down to the undeniably somewhat terrifying list of SEs that are too much for some people to tackle or are there other factors that I've not yet considered? Any thoughts & opinions welcomed even if you're "not eligible" for treatment I'd love to hear (well read) your thoughts, they're so much easier to process than endless technical & medical jargon for a change :D
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@Charliegirl
@Charliegirl
 

I had Lemtrada 4 weeks ago and at this point I sometimes wish I had not had it.... Apparently I have to wait 3 mths for any change.... I want changes now....am inpatient by nature lol....would think really good about trying Lemtrada as its a 5 yr commitment to blood tests every month. ...apparently the Lemtrada is out of my system after a week but causes a whole bunch of other issues...I had no other medication to go on as nothing else is working for me....have had MS for 23 yrs so my disability is noticeable....5 yrs ago I could live with it in the background but now it is in my face....I dont know how long you have had MS ....the trials on people who have MS FOR 5ish years or less seems good but someone like me there hasnt been trials so don't know what is going to happen....good luck with finding what your journey should be for you....am still learning lol

@lilbird
@lilbird
 

Thanks to both of you :) @orlando27 I've had plenty of experience of the medical profession for myself & others over the years, therefore have known from a young age that they're certainly not all to be given blind faith! @charliegirl I am only recently diagnosed. Symptoms of my current relapse are pretty difficult to ignore as the worst affected are my hands & arms. A 5 year commitment to blood tests doesn't sound too bad as a trade off if there is any possibility of "fixing" this problem &/or preventing all manner of other possible nasties. Everything I'm reading suggests the sooner you act after diagnosis the better the possible outcome. Does that mean I could be lucky enough to stop this thing in it's tracks before it does any more damage? That part really does sound tempting.