@Bernie 

Last reply

Bernie

Medication

Hi all, just wondering if someone could answer my question please. September 22/09/2014 I got diagnosed with MS took one relapse pin needles down right arm feet! Rang my ms nurse she got me down to talk about my medication but she's not starting me on anything till February 3rd? Could someone please tell me why they wait that long after been diagnose? Many thanks hope everyone feeling good! Bernie x
@jj5sim

Hi @Bernie I had to wait a while when I started my first medication (extavia). Depending on which medication you are going to be on it isn't necessarily your Ms nurse that will be providing the medication. Some of the pharmaceutical companies that supply the medication have their own specialist nurses(Bupa) that show you how to inject for instance on your first treatment and after that it just gets delivered directly to you. Obviously there aren't a lot of these nurses that only deal with DMDs so it can take a while to find a suitable time where they can manage to see you. If you have any worries about how long it is taking you should maybe ask your MS nurse. Hope this helps and good luck

@Stumbler

Hi @Bernie, I think you'll find that it's the wheels of bureaucracy that revolve slowly. it's not just a question of writing a prescription, they'll need to get funds allocated by your local clinical commissioning group (CCG). The CCG only meet so many times throughout the month. Then there's the logistics of ordering the medication and getting you the correct level of education regarding it. Dependent on the medication, there may be a need for you to be monitored for a few hours after your first dose - so more organisation.... Which medication are you going to be taking?