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@Hannah015 

Last reply

Hannah015

Lemtrada

Hey all So as most of you know I have been waiting over a year for Lemtrada that I was promised by QE in Birmingham. I keep being told by my neurologist that my MRI and previous relapse show I'm on borrowed time of a really bad relapse, at least that's what he believes. So far I have proved him wrong on all counts, but obviously I need treatment soon. I feel waiting a year is ridiculous now. He called. Friday and said they won't be ready for ages so now he is referring me. I asked ages ago, contacted many people, including ms society, my local mp, various politicians and NICE to be told I'm being referred. It's terrible, I only hope no one else is going through this mess around. It wouldn't be so bad if my dr didn't say he doesn't think I have such a good chance of recovering next time due to extent of last relapse. I think I'm doing incredibly well considering yet he just puts a downer on everything. Makes me want to work in ms cause I don't feel like any of the professionals i have seen push to help, I'm just glad I have taken things into my own hands and changed diet, researched supplements and exercise to keep myself strong. Sorry for rant it's just getting a dad ridiculous xx
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@Stumbler
@Stumbler
 

I feel your frustration @Hannah015 . We seem to pay all the top managers salaries that we can only dream about and they preside over fiascos like this! It's unbelievable.

@Hannah015
@Hannah015
 

It's so true @stumbler I don't understand why he couldn't of referred me a year ago rather than risk my health like he has, although I know it's probably not his fault more the top bosses but even so it's ridiculous. I have just been looking at changing my career to work in the medical profession in some way. It would be more interesting than working in a bank :) and I feel like I want to help others with ms. My ms nurse when I was in hospital wAs very negative and didn't push or help motivate me, the physios just said I would need a wheelchair most of the time and dr just gives negative info. I'm glad I pushed myself as hard as I did but I think people just diagnosed need to be told the positives. I mean we all need to hear positives not negatives, guys with ms that run marathons etc. They are all doom and gloom when the reality of ms is we can still be what we want to be just maybe have to work harder to get it. I just need to find the right job now oh and get my treatment lol. Sorry for my rant yet again :) hope your well xx