optic neuritis?

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April 20, 2009 at 6:57 pm #5103

Hi ghada, I’ve had optic neuritis a few times and I think unfortunately that’s what you may have. There’s not really any treatment for it (that I have been told) but my first relapse was optic neuritis and I went to see an opthamologist(sp?) and had some different tests.
In my opinion the best thing is to not get overheated or exert yourself too much as that can increase bluryness, pain etc.
Also, my new neurologist told me at my first appointment with him that usually when Optic Neuritis is the first relapse, the prognosis is alot better.

August 7, 2009 at 8:11 am #6131

Hi, I had optic neuritis a long time ago – I lost the sight in my left eye for about a month, the sight returned and although that eye is worse than the right one now I can see fine. I also had a period of double vision for about 6 weeks a few years ago, no treatment was available but it did get better. Hold on in there.

August 7, 2009 at 7:25 pm #6146

My first attack was double vision -both eyes are seeing the same perfect picture, but your brain isn’t in control of co-ordinating their movement. I have 20/20 vision. I had to get clear glasses, in which I wore prisms, given to meat the eye hospital. I had it for 8 months, didn’t get better gradually, just went away one day.

Once diagnosed, can get steroids for any future attacks.

September 19, 2009 at 11:07 pm #1184
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ghada

Hi,
i have just got double visionin in both eyes (i think) and some pain. Have been to doctor who sent with a week’s sick note and a referral to neurologist. i have not been officially diagnosed and feel therefore that i am missing out on treatment! anyone know how long this lasts and any tips??

September 19, 2009 at 11:07 pm #6436

My diagnosis-attack was optic neuritis, I went on steroids right away, 3 days of IV and 8 days of oral, and my vision was back by the end, except that eye has a little different “color vision”.

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Optic neuritis

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HomepageForumsSex, drugs and rock & rollOptic neuritis

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March 28, 2009 at 5:51 pm #4921

I had optic neuritis and it lasted about 8 weeks. I found that it reacted to heat so it would always be worse after I had been exercising etc. I think that keeping yourself cool really helps and if it was really bad a cold shower would help it improve a bit. I still get it a bit when it is really hot but never as bad as it was. It will improve in time so try not to worry too much.

March 28, 2009 at 7:12 pm #4922

It’s quite a humbling experience, isn’t it? I had it for about 6 weeks and in my good eye (my other eye has been blind since birth) so I literally could only see light or dark. However, I always knew it would come back. The doctors offered steroids but as they told me it was only 50% helpful as opposed to not, I decided not to take them. It will definitely get better for you so see if you can focus on your other senses for now.

March 30, 2009 at 9:27 am #4934

I have had it since January 1st (great start to the year!) At one point no sight at all in my left eye. Now it is like looking through very dark smoky glass. It is very weird, and changes during the day and the light level. My neurologist told me of someone who lost the sight in one eye for six months, but after 2 years could see normally again. I take cod liver oil and evening promrose, as they are supposed to help myelin repair. Also, I exercise it home by wearing an eye patch over my good eye- Pirate-style…

April 4, 2009 at 9:08 pm #4998

not a good feeling. i had this in one eye for nearly two months but a high dose of steroids helped and even though i still can’t see properly – it is like looking out of a dark smoky glass – i’m hoping it will still recover.
To make it worse i get double vision and have also used an eye patch over my good eye to stop my bad one looking lazy!

April 4, 2009 at 9:23 pm #1133
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joon

It’s the scariest thing ever. Any tips on how to deal with it gratefully received :)

April 4, 2009 at 9:23 pm #5003

I’ve had it twice, but it only lasted about a month and only affected my left eye. My neurologist doesn’t favour steroids for optic neuritis so it was a case of waiting for it to get better. I was ‘lucky’ that it only affected me by a grey film in the middle of my vision, so it wasn’t too limiting – I was still able to drive. When the mist cleared, the first time resulted (or was followed by – who knows whether it’s cause and effect) my needing glasses for reading. The second has left me with poorer long distance vision which my right eye presently compensates for, but I imagine when I go back to the opticians that’ll be added to my prescription.

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