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@Debski63 

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Debski63

MAYZENT (Siponimod)

Hi My name is Debbie I am 63 and have secondary progressive MS. I have just been offered Mayzent to slow down the progression. I would like to know if anyone else has taken this and what you think. Thank you in advance

@166wow 

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166wow

Tender scalp

My scalp (not hair) is very tender and occasionally I have terrific itching. Is these common?
London, United Kingdom

@Equalsquare 

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Equalsquare

Siponimod

I am about to start siponimod treatment after stopping on rebif beta interferon. I am now SPMS. Who has started on Siponomod? Any thoughts, what's your experience of it? How have your MS symptoms been with this drug.

@calNFFC 

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calNFFC

Itchy scalp

Hi all, Does anyone have any advice/tips to ease a really itchy scalp? Itchyness under the skin comes and goes and is bearable but my scalp as been this way for a week now and is driving me mad.

@Hill1958 

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Hill1958

Falls with possible MS

I think I have MS I have had a good few falls - what happens is, Once I got out of my car at my sons school, my heel of my runner went into the pot hole I held onto the handle of my car door, next I felt all power leave from my neck and hands Like the blood draining Next I collapsed, like I fainte...

@Croft239 

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Croft239

Clear lumber puncture results

Hello I was diagnosed June 2023. I had an MRI which showed some lesions. But I also had a lumber puncture which was normal. Although I have many ms symptoms (overactive bladder, weak legs , fatigue) I think I have always struggled with the ‘what if it’s not?’ Because my lumber puncture was normal....

@Mcfly 

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Mcfly

Where are your lesions?

Hi Just a quick question. Do any of you just have spinal lesions? Or do you have them in your brain as well as spine? Thanks so much in advance for your comments and time.
Perth, Australia

@Jess_M 

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Jess_M

Endep & Gabapentin

Hey just wondering if anyone else has been recommended either Endep (Amitriptyline) or Gabapentin for nerve pain? My Gynaecologist has recommended Endep for my Endometriosis BUT didn't want it to interfere with MS and has asked me to chat to my Nuerologist about it (which I will) but just wanting ...

Not sure

Hi everyone Not been on here for a while . I need some advice as to what to do . Being diagnosed last year , I have had a few symptoms raise there head . However this wk , I have come down with what I think is a cold . My whole body aches as normal with a cold , my legs on the other hand feel heavy...