BETA explained

You have probably seen the Beta sign at the top of the website – what does this mean? Well, in short, it mean this website is a work in progress. We are aware there are glitches, incomplete pages, links that don’t work, some accessibility issues… but instead of the backroom staff – that’s Beki, Freddie and [...]

MS Trust Awareness Week

MS Awareness week is here! This is the 5th MS Awareness week I have been involved in planning, and I do think it is a good way to try to reach out to people who don’t know about MS, but it’s also a great way for people who have MS themselves to learn more about [...]

aid4disabled

I am Patrick and I have Secondary Progressive Multiple Sclerosis. My first symptoms happened in or around 1979, and I was diagnosed with SPMS in 1995. At the beginning of February my website www.aid4disabled.com was born. Its aim is to provide information for people who are disabled but yearn for more independence and want to find a way to improve the quality of their life.

The e-Health Impact Questionnaire

People’s experiences of caring can be an important source of information to other people who are caring for a person with multiple sclerosis. Traditional health information has been based on facts and figures, not the experiences of other patients or carers of people with similar conditions. Today health websites can contain traditional health information, accounts or stories of people’s experiences of health, blogs about health and discussion boards. With increasing use of the internet for health information, it is important to understand how people view websites and what impact they may have on carers who access them.

Prepping up for MS Life

Hope to see you UK-based folk at MS Life this weekend. We’ll be there in the Support section – so make sure you come along and say hi!

We love My New Normals

To be quite honest, the life I am currently living would have formally been perceived by me as my worse nightmare. Thank goodness through time and loved ones I’ve been able to craft a new normal in this dream that is my reality. Once I surpassed a huge obstacle known as denial, I was able to move forward. Be it with a limp, cane, wheelchair or scooter I’ve managed to face and live through it all. Who would have thought? Certainly not me!

Supporting members of the military family affected by MS

I am the Chairman of an amazing group I helped set up 20 years ago. Mutual Support offers support to serving and retired members of the military and their dependants affected by MS.

Gpeps on tour: the tash

Check out George’s latest vid from South America

ms life is coming up!

I’ve been really busy the last couple of weeks here in the ms life team. From processing the 700 attendee bookings (plus the many more that are flooding in everyday!) to trying to plan the workshop sessions.

Walking aids: a study

Hi, my name is Emma and I’m a 5th year Masters student at the University of Strathclyde. For the last two years my research has focused on the effect of walking aids such as an ankle brace on the movement of people with MS.